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Leadership Studio '15 - Team 17

Leadership Studio '15 - Team 17

Leadership Studio '15 - Team 17 in DFA Leadership Studio 2015

Team

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PJ Endler

1 minute pitch:

Every year, students with down syndrome are excluded from the educations they desperately need. They find it difficult to connect with their peers because up until now, they've only been taught the differences between themselves. ArtShare is an artistic activity for elementary school classrooms to foster a culture of inclusion for kids with Downs syndrome. We've created a non-competitive activity in which teachers play a variety of songs and students put their feelings into drawing form, building off each other to create a collaborative art piece. At ArtShare, we believe if we can emphasize similarities and not differences between kids, we can build a better educational environment for everyone involved.

3 years ago ·

Lawrence Xiong Rogers

Hi guys! This is the first time I've seen this page! I'm excited to meet you all and I apologize for having no idea what this loft thing is.

3 years ago ·

Kelly Wisneski

Ugh sorry I accidentally deleted the last post so lemme try to recreate all of its glory:

Hey y'all! I just wanted to update you on some of the items we discussed in the pre-LS conference call this evening:

ON TALKING WITH USERS:
- Don't assume a user has DS if you're not sure, as not everyone identifies as having DS. Start with more general questions, especially if they haven't provided directly that they have DS (instead of asking "How does DS affect your morning routine?" try "Can you describe your morning routine?")
- No matter your interviewee, think about the consequences and effects of each question you ask
- Try to stick to very open-ended questions
- When talking to caregivers or families, use an actual name or a nondescript noun to refer to someone with DS (i.e. "your resident" or "your child" or their actual name instead of "person with DS")

OTHER MISC
- There are a lot of helpful files on the Loft LS 2015 page, but make sure you're logged in in order to see them
- The agenda for the LS weekend should be posted tomorrow, so make sure to check that out as well.
- Please bring your computer and charger to LS and everyday to "The Garage" (workspace where most of the weekend will take place)
- There is no cell service in The Garage

That's about it! The call was pretty straightforward but it was exciting to start meeting some of the other participants!

And s/o to Melissa for getting in touch with the speech therapist -- is he/she willing to commit to (preferably) a video call from 1-2pm CT on Fri, Aug. 7th?

3 years ago ·

Melissa Flores - I'm currently trying to confirm the time with the speech therapist, but I got a call back from the Down Syndrome Association of Central Texas as well.

3 years ago

Melissa Flores - The speech therapist will probably commit to a phone call. They don't use Skype because it's not very secure. I also heard back from the president of the Down Syndrome Association of Central Texas and she'd be available for a video call. Everyone on the board has a friend or relative with Down Syndrome.

3 years ago

PJ Endler

Just posted the stand guys! Can anyone else cover the interview type thing tomorrow?

3 years ago ·

Kelly Wisneski - I can. Thanks for posting the stand!

3 years ago

Stand for Wednesday, Jul 22

What’s your sprint goal for this week?
Our spring goal for this week is to get in contact with professors, doctors, therapists, or just teachers who specialize or are knowledgable about down syndrome.
Are you on track to achieving your sprint goal?
Yes
What specific progress have you made toward the goal since last stand?
Kelly Wisneski is waiting for a response from some professors/doctors at a children's hospital that looked promising online.
What obstacles are in the way of achieving your sprint goal? Who do you need to talk to or what will you do to overcome these obstacles?
If that does not work out, I will contact somebody with down syndrome that was recommended to me by a trusted friend. At this point, we are waiting people to contact us so that we can ask them to call or Skype in during the Leadership Studio.

Lawrence Xiong Rogers joined the project

3 years ago ·

Polina Tamarina joined the project

3 years ago ·

Kelly Wisneski

Hey guys! First off, very excited to meet and work with you all!

I glanced through the intro powerpoint and noticed that there were some deadlines for July, one of them being today (narrowing our topic's focus). Do y'all know anything about that? I feel like it hasn't been well publicized.

3 years ago ·

PJ Endler - Hi Kelly! Just checked out that powerpoint, and it looks like we do have to start narrowing our topic's focus and thinking about recruiting 1-3 people to talk on the phone or via Skype during the LS studio on August 7th from 1-2 pm CT. Do you or anyone else in the studio have a preference on whether we focus on people with down syndrome's limitations with 1) health, 2) education, or 3) communication? And when we decide that we can narrow down whether we want to do research on people with DS, their family members, or their educators. If people have preferences just say so, or I could help narrow it down

3 years ago

Melissa Flores - Hi Kelly and PJ! I don't have a preference. While we wait for the rest of the team to reply, I can start doing some background research.

3 years ago

Kelly Wisneski - Sounds dope, Melissa. I don't have a preference either. I anticipate the education topic will deal with more systemic issues in the education system and the perception of people with down syndrome, but that's just a hypothesis. All of the topics will probably deal with this in some sense.

Perhaps I can email the other members and remind them to create a Loft account.

3 years ago

Polina Tamarina - I'm really excited by the communication topic. I think it's narrow enough that it'll allow us to focus, but there's a lot to dig into in terms of psychology, societal perception, tech/communication tools, etc. That would be my vote, but they all sound cool.

3 years ago

PJ Endler - Yeah the communication aspect definitely has a lot we could cover, unless somebody objects let's use that. And does anybody know anyone with down syndrome, or an educator or family member of somebody with down syndrome that we could get to call in? I can reach out to someone who works at the Veterans Association who has down syndrome, but in case that doesn't work out we should definitely have everyone see if they can get someone also

3 years ago

Melissa Flores - I was thinking of finding a professor in communication disorders. I can ask some friends if they know any professors who research communication disorders in people with Down's Syndrome. What do you think?

3 years ago

PJ Endler - Yeah that sounds helpful!

3 years ago

Melissa Flores - Update: I couldn't find a professor who researched speech disorders in people with Down's Syndrome. However, I found a speech therapist who specializes in this. I can reach out to that office and the Down Syndrome Society of Central Texas instead.

3 years ago

Kelly Wisneski - I've found some professors / doctors at the Barnes-Jewish Childrens hospital that look promising online, so hopefully they will respond to me emails!

3 years ago

PJ Endler - So for tomorrow, are we trying to narrow it down to communication and educators of people with down syndrome?

3 years ago

Kelly Wisneski - I think the consensus is definitely communication, but not sure about the educators. I think that'll depend on who we get as our call-ins, but probably a good guess for now.

3 years ago

Melissa Flores - I got a call back from a speech therapist who would be happy to help out! I'm still waiting on a response from the Down Syndrome Society of Central Texas.

3 years ago

Kelly Wisneski joined the project

3 years ago ·

PJ Endler joined the project

3 years ago ·

Melissa Flores joined the project

3 years ago ·

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