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Leadership Studio '15 - Team 16

Leadership Studio '15 - Team 16

Leadership Studio '15 - Team 16 in DFA Leadership Studio 2015

Team

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Christina Clark

Let's be friends! Post your fb urls: https://www.facebook.com/christina.clark.5473
insta: christinanicole5
my bunny's insta (yeah I'm serious): sirsmores

3 years ago ·

Karishma Patel - https://www.facebook.com/karishma.patel.7
insta: karishmaa3

3 years ago

Iyad Owen-Elia

http://www.jensonsstory.blogspot.com/
http://osoronut.blogspot.com/
https://barryandashley.wordpress.com/category/eli/
https://nickspecialneeds.wordpress.com/page/3/

3 years ago ·

Karishma Patel

If we're finalized in the education direction, I'm going to go ahead and ask my friend about her little sister. I know it's not the university level, but just to see if there have been any issues her family has faced regarding her education.

3 years ago ·

Justin Lau - Sounds good!

3 years ago

Karishma Patel

Hi guys, so I thought I had joined this a long time ago, but I guess something happened because I haven't been getting any updates from Loft about anything. I think I have a friend whose little sister has Down Syndrome, but I'm really confused as to what the context of our project is

3 years ago ·

Karishma Patel joined the project

3 years ago ·

Justin Lau

Health Care Guidelines for people with Down Syndrome posted in the "files" section!

3 years ago ·

Christina Clark

We have an interview for Friday locked down! Joyce Clark of the Down Syndrome Association of San Diego will be speaking with us over the phone. I'm going to email her more information about the conference and what to expect in the call. What specific talking points do you guys think I should include?

3 years ago ·

Justin Lau - Does Joyce have particular expertise and unique perspective of Down Syndrome? I think even if she knows a lot about it in general, and can give us loads of information about it, it might be a good idea for us to go in with some sort of agenda - like the user and the area of focus. Right now it seems like we're going in the direction of education. I suppose we can decide during the conference to go towards a certain focus (person w/ down syndrome, caregivers and educators, and family members). But I'm looking at the website with the organization you mentioned and it seems that it's really engaged with "local and national initiatives" to enhance things like education to children with Down Syndrome. What if we ask about them? To get more info about what people are doing to make education more accessible to these people, I mean.

3 years ago

Justin Lau - I'm thinking that we could also maybe try to ask if she's personally coached parents/caregivers about taking care of children with Down Syndrome. That might help us get some personal stories of people seeking help and info on how the organization responds to these calls. I just looked at these health care guidelines online created by an organization called the Down Syndrome Medical Interest Group and they give a lot of directions for taking care of children at different stages of their lives. That might lead us away from asking questions directly about that, since we can just look at them in this document. I'll post it in the "files" section!

Anyway, that's all I have to offer. What do you think?

3 years ago

Christina Clark - I think going with the education direction is a great idea. It'll give us enough focus to structure the conversation but leave room for lots of talking points. She mentioned she was a parent as well so we can ask her questions as a potential user too.

3 years ago

Christina Clark - Joyce has also held a leadership role at the Exceptional Family Resource Center at San Diego State University, which caters to families with children with special needs

3 years ago

Christina Clark - Here's my email:

3 years ago

Christina Clark - Dear Joyce,
Thank you so much for calling me back today and agreeing to speak to my team. We are looking forward to the call! For some background on the conference, there are over 90 students from 29 universities coming together this weekend at Northwestern University. All of us are part of Design for America chapters at our campuses (if you're interested, you can learn more about DFA here: http://designforamerica.com/) We have been split into teams of 5-6 members, each with the goal of designing a project that addresses the challenges faced either by people with Down Syndrome or their family members.

My team is interested in focusing on a challenge related to education, whether that means educating individuals with Down Syndrome, their families about living with someone who has Down Syndrome, or the public about Down Syndrome awareness. Of course, we're aware that there is already a broad range of programs that address education, like the ones listed on the Down Syndrome Association's and Exceptional Family Resource Center's websites, who were designed by people with far more knowledge and experience related to Down Syndrome. We know our niche is most likely to be addressing a small but widespread problem related to education, and we'd love use our time with you to figure out where we could best be of help.

Any information related to your experience working with these educational programs, your perspective as a parent of a child with Down Syndrome, and your time advocating for children with special needs is invaluable. We'd love to hear your opinion on which programs are most successful and how they could be improved, as well as issues related to education that haven't been addressed enough. If you know of a challenge related to Down Syndrome that would be helpful for us to work on, but isn't related to education, please tell us about it anyway! We're still very open at this point in the process and the perspectives of people like you have a huge influence on our direction.

If you have any more questions, or if I wasn't clear enough on something, please let me know. Again, looking forward to the call!

Best,
Christina

3 years ago

Sara Yang - Hi guys -- sorry for being so MIA! Finishing up my internship right now, so it's been crazy wrapping up all the projects. I just wanted to let you guys know that I'm actually landing in Chicago at 5 am on Friday because I couldn't get more time off work. Looking forward to meeting you guys & diving in!

3 years ago

Christina Clark

I called the National Down Syndrome Society and asked the woman on the phone where she thought a project like ours could make a big impact. She said it would be a good idea to look at education and mentioned issues related to inclusion and employment. She also said a lot of universities are developing new programs for individuals with disabilities. I also looked at their "local resources" page and found a lot of nearby organizations, including:
GiGi’s Playhouse Chicago:
Chain of down syndrome achievement centers
Focus: education, job training

UPS for Downs
United Parent Support for Down Syndrome
Focuses on people with DS & their family- education for siblings of people with DS, parent workshop, etc

Chasing Dreams
Focuses on individuals & families
Self esteem, physical, & social skills

What do you all think about doing more research on education?

3 years ago ·

Justin Lau - So all of these places are near Chicago? I'm wondering if we could actually visit them, as that would probably give us the most information. Thanks for giving them a call. It seems that now we're focusing less on the actual people with Down Syndrome and I suppose more on caregivers and educators. I'm definitely for going in this direction - based on the limited time we have.

3 years ago

Justin Lau - Christina, do you mind confirming the call for Friday?

3 years ago

Justin Lau - Thanks! :)

3 years ago

Justin Lau

Just got off the conference call! This is what I wrote down --

Quick and dirty facts!
18 teams
20-25 minute walk to the place (it's a garage, basically!) from the hotel
Scheduled interview on August 7th, at around 2-3 pm

Important:

Really essential to empathize with the interviewee. We'll cover more about this during the actual conference. There are some tricks that help keep the conversation/interview going, like the following: relating the questions back to ourselves by telling personal stories, predicting if the question will elicit a negative response, and asking open ended questions.

We'll have some speakers during the conference and also a career fair. They said we could bring resumes and things for that, but this is definitely not required. It's up to us.

We need to bring our laptops! Throughout the weekend, we'll be using the Loft for critiques and such. Also, we need them for our interview on Friday.


That's it!

3 years ago ·

Sara Yang

Hi team! Hope all is well. :)

Just so we have some more tools for communication...

Whenisgood (to grab some time for a group video call)
GroupMe
Gdoc (for sharing thoughts / insights on problem space & users)

I've included the links in comments, b/c they become broken in the post! We can use or not use any of these, but I figured it wouldn't hurt to start off. Maybe leave a comment with your thoughts?

P.S. Here's the link for whenisgood results ( http://whenisgood.net/85dscbn/results/ncwfq8m ) !

3 years ago ·

Sara Yang - Whenisgood: http://whenisgood.net/85dscbn

3 years ago

Justin Lau - All of this looks amazing, I joined/filled in everything.
And I just added my quotes in the next empty page in the google doc.

3 years ago

Christina Clark

Hey guys, does anyone have any connections to people with down syndrome or people who have had family members with it? Might be a good place to start as we figure out our focus. Also, I can't do the call on Thursday as I'll be at a memorial service, but is anyone else free?

3 years ago ·

Justin Lau - Hey. I personally don't know anyone or really have been affected by people with Down Syndrome in the past; I just did a quick Google search and found that the National Down Syndrom Society is happy to take calls about inquiries related to this issue.

http://www.ndss.org/Resources/Helpline/

I just found a place 30 minutes away from our conference...they also have a website: http://www.nads.org/

So even if we don't know anyone personally with Down Syndrome, there are some other possibilities. Looking at the information packet, I can take care of the 15+ quotes that we apparently need!

3 years ago

Christina Clark - I can contact those places! Anyone else thinking about doing the phone call?

3 years ago

Sara Yang - For the Thursday phone call, I will unfortunately be right in the middle of a mandatory event for my internship! Happy to help however else possible thought -- i.e. passing along some more secondary research.

And that's awesome, thanks Justin!

3 years ago

Justin Lau - I RSVP'd to the call, so I'll be there!

3 years ago

Lars Rasmussen joined the project

3 years ago ·

Justin Lau

Hey everybody! I was thinking about the area of education for the scope of our project, as well as the user as the person with down syndrome. Thoughts? Looking forward to meeting you all!

3 years ago ·

Lars Rasmussen - Education is a potential option, but may be difficult. It is something a lot of people seem to already be addressing, and we would be starting from the ground up. Not to rule it out, but focusing on quality of life or the family of people with down syndrome are also viable paths.

3 years ago

Sara Yang joined the project

3 years ago ·

Christina Clark joined the project

3 years ago ·

Robert Calvey

All, I'd like to introduce you to Christina Clark, who is studying sustainable development at Barnard Columbia. Christina has just registered for Leadership Studio and will be joining your team!

3 years ago ·

Christina Clark - Thank you for the introduction!

3 years ago

Justin Lau joined the project

3 years ago ·

Sahil Kumar joined the project

3 years ago ·

Iyad Owen-Elia joined the project

3 years ago ·

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