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Leadership Studio '15 - Team 2

Leadership Studio '15 - Team 2

Leadership Studio '15 - Team 2 in DFA Leadership Studio 2015

Team

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Amanda Kibbel

Team 2 Exposition:

1 in 691 kids are born with Down Syndrome every year. For many parents of children with Down Syndrome, the hardest part of their journey is the day their child is diagnosed. Carebasket is a congratulatory gift bag for new parents of children born with Down Syndrome that aims to provide them support from their community in a new chapter of their lives. Carebasket includes a directory of local people, services, and support groups to help parents start building their own network. It also provides parents with a "congrats" instead of an "I'm sorry." Raising a child with Down Syndrome while maintaining a positive family dynamic requires a support system that extends beyond a family's front door. With the help of local and national organizations, Carebasket can come to fruition and help new and existing families in any community.

3 years ago ·

Stand for Wednesday, Jul 22

What’s your sprint goal for this week?
Complete secondary research and determine possible interview candidates for LS2015.
Are you on track to achieving your sprint goal?
Yes
What specific progress have you made toward the goal since last stand?
We have decided that our focus area will be improving communication between those effected by Down Syndrome and Caregivers. Our preliminary research showed that relationships with caregivers are often important sources of socialization for those with Down Syndrome, and that parents often have trouble finding qualified caregivers for those with Down Syndrome.
What obstacles are in the way of achieving your sprint goal? Who do you need to talk to or what will you do to overcome these obstacles?
Our communication has been fairly disjointed, and we do not have a clear allocation of duties among team members. To address this, we are finding a time this weekend when we will all be available to discuss our project goals and member duties.

Ian Dwyer

All right guys, I think it's fair to say that we're pretty significantly behind where we're supposed to be. They definitely could have made it clearer that we had a bunch of research to do prior to the studio, I didn't even realize we were supposed to be doing anything until this past weekend. That said, I think we still have enough time to pick a focus area and do at least a little bit of research by Thursday, if everyone chips in a little. In terms of focuses, I'd be in favor of focusing on communication with Caregivers & Educators. I figure this is a pretty key aspect of improving the life of someone living with Down Syndrome, as it will significantly effect how capable that person is of living and communicating independently. Anyone feel strongly one way or another?

For anyone who didn't see the LS pamphlet (which I didn't for a while) it's right here: https://s3.amazonaws.com/media.loft.io/attachments/LS2015_Challenge_Packet_EBAgO4J.pdf

3 years ago ·

Austin Gartside - i really like the idea of educators focusing on educators

3 years ago

Ian Dwyer - Now that I've done a little research I'm slightly less sure it's such a good focus area, since kids with Downs syndrome receive special education anyway so the instructors are likely given some sort of prep or training for working with affected kids. I think it would still be good to focus on caregivers though, since it seems parents often have trouble finding caregivers they trust with their special needs child, and we could workeep on creating more qualified caregivers.

3 years ago

Hannah Hunter - I think focusing on caregivers would be good. A lot of what people with Downs syndrome learn probably comes from their time spent out of school and a caregiver who knows what activities to do with a kid with Downs could provide quality learning experiences. I listened to this guy at a conference thing that was hired by the parents of a kid with Downs to give the kid music lessons. He would go to the kid's house however many times a week and teach him how to play different instruments. The guy said he could see the kid's social skills develop and he became really close friends with the kid. So maybe we could focus on how to help caregivers provide experiences like that?

3 years ago

Ian Dwyer - Okay, so I've posted the stand we were asked to create for today. One of the things I mentioned in it is that so far our communication hasn't been very efficient, so I'm suggesting we all find some time to be online this weekend to go over what we're going to research, and who we might interview. After that, we can play catch up a bit to get to where we're supposed to be at this point.

3 years ago

Ian Dwyer - I'll be free just about any time Saturday or Sunday I believe

3 years ago

Austin Gartside - works for me

3 years ago

Hannah Hunter - Can we all get on group me or a facebook group message or something? I don't know about you guys but that's way more accessible for me

3 years ago

Ian Dwyer - I like Groupme, if everyone posts their numbers I'll put one together

3 years ago

Hannah Hunter - Perfect. 810 845 5892

3 years ago

Amanda Kibbel - 425 281 6313

3 years ago

Austin Gartside - 818 388 3300

3 years ago

Julie Schnur - 314 686 8538

3 years ago

Austin Gartside

is anyone free for the phone call on Thursday?

3 years ago ·

Hannah Hunter - I should be free until about 3:00 on Thursday.

3 years ago

Ian Dwyer - Are we talking about the group call Thursday night? If so I'm free for that.

3 years ago

Austin Gartside - yeah the group call, i just wanted to check because i'll porbably still be at work so i don't know if i can make it

3 years ago

Amanda Kibbel - I'm free before 12pm, between 4-6pm, or after 10pm (if people really enjoy late night group sessions) thursday, sorry its kind of inconvenient.

3 years ago

Ian Dwyer - So it sounds like I'm probably going to be representing us for the call? We are also supposed to put a 'stand' together by the end of today, do can people post any research they have done?

3 years ago

Austin Gartside - i'm sorry i haven't been able to get something done, but thanks for representing us for the call!

3 years ago

Austin Gartside

If anyone actually sees this post, could they respond so I know that people are able to see it?

3 years ago ·

Ian Dwyer - I can see it!

3 years ago

Austin Gartside - awesome!

3 years ago

Hannah Hunter - I can see it!

3 years ago

Amanda Kibbel - Got it

3 years ago

Austin Gartside

Just wondering, but has anyone started looking for interviews or thought about the focus for our project?

3 years ago ·

Julie Schnur - I briefly looked at using CPAP masks to address obstructive sleep apnea for those with Down syndrome. CPAP masks work well for the general population, but it seems that Down syndrome patients have a hard time finding masks that fit. I realize that's a very specific issue, but if we decide to focus on the health category, that's an idea.

3 years ago

Ian Dwyer - Sounds like a cool idea Julie. I'm starting to do a bit of research now.

3 years ago

Ian Dwyer joined the project

3 years ago ·

Hannah Hunter joined the project

3 years ago ·

Amanda Kibbel joined the project

3 years ago ·

Austin Gartside joined the project

3 years ago ·

Julie Schnur joined the project

3 years ago ·

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